Haven't felt like writing the past few months. Guess I have been have a pity party for myself. But two great friends of mine got me back on track. (Thanks Christy and Reagan) I started this blog to let everyone know how I was doing and what was going on with my health issues. Well it was brought to my attention that not everyone wants to know about that. I guess I never understood it. So now I am going to try to be positive and only post positive things. Just because I have lupus doesn't mean it has me. Love you all and hope you and your families have a Happy Thanksgiving.
Well I am still fighting the good fight. I have now been put on lovenox shots for my blood clots. They are suppose to keep things leveled out however they cost $3600 a month. that is correct that is not a type o! My insurance will only cover 80% so that leaves me with $721 a month to come up with. I am not making it now so I don't know what I am going to do about these shots. Yes I have contacted the maker of the shots but since I have private insurance they cant help. Yes I have contacted the government and even the President but since I make more than $10 an hour they cant help. I am just so lost......... I mean how can our country take care of everyone else but not our own people. It is not my fault I make more than $10 an hour. I am not asking for a hand out I just need some help. sorry to sound like such a Debbie downer but I am really scared that if I don't find a way to pay for these medicines I could die or if I do pay for them I cant pay my rent and other bills and will be homeless. Anybody with any ideas would help. Thanks for listening.
Well its been awhile since I have blogged, why ? yes back in the hospital again. I went in the end of April with pneumonia (stayed 7 days in hospital) got out and yes went right back in one week later still with pneumonia (stayed 4 days in hospital) got out and then the scare came again. I was drying off from a shower and got pains in my chest, rushed to the ER and found out a clot was passing and was getting stuck. This put me back in the hospital for another 4 days, seems to me I should have my own wing there now. LOL. I am on blood thinners and shots for the pulmonary embolisms and only on 5 medicines for my Lupus. That is great due to the fact that when I went into the hospital I was on 13 medicines just for my Lupus. I am taking one day at a time, back at work and really hanging on to my faith. There has been some family drama so I don't have the support system I use to. I am trying to get out of my lease and move in with a friend. I think it will do me some good to be with someone else and not be living alone and going through all this. I want to thank everyone for the cards, calls, gifts and prayers, I love you all.
Well the past month has been a world wind. I went out on short term disability for my lupus on March 2nd. I was suppose to go back to work in 2 weeks. However, on March 25th I was put into ICU for two blood clots and multiplePulmonary embolisms. I was in the hospital for 7 days and I am now back at home. The blood clots are still in my lungs so I have to take things very slow and careful. I have 4 doctors appointments next week and hopefully I can go back to work soon. It has been really rough not getting a paycheck for 5 weeks. Thank goodness for my dad, sister and my friends for helping out. I am still scared of the blood clots with me living alone but I have great friends checking on me all the time. I hope everyone is fine. Talk to you soon. Love yall!!!!
Well as most of you know I have been off work since March 2, 2010. I went in for normal bladder surgery and my lupus went crazy! I have not been back to work since. I am still waiting on my disability claim to be approved. They do not start collecting information until you have been off 14 days. So on March 16, 2010 they Mailed out the request to the doctor . The doctor has 15 days to respond. So doing the math on that I have been 3 weeks with no money and do not know when I will go back to work. I am starting to want to give up. This is just getting to be to much.
Just when I start to feel better I get another problem. I have been dealing with bladder problems for some time now. I was going to have surgery but the doctor cant do it because my pelvic bones are deteriorating so we had to do a temporary fix. I have been off work for two days dealing with this. I am feeling better today just very tired.
Well I have been spending most of my weekends at the ER. Last weekend I started having Kidney problems and ended up in the ER. My kidneys are not wanting to work very well. Again more meds, lots of fluids and lots of rest. I go back to the doctor on Monday to see how everything is going. Praying for a good report.
Well 2010 has not started out to good! Some how/some where I got Hepatitis A? I understand not having an immune system but where did I catch this from. After two trips to the ER, two trips to the doctor, lots of Medicines, and shots I think I am finally getting better. Boy what a way to start the year off.
Well 2009 is over and now on to 2010! The second round of radiation did not work so we are going to try chemo pills. I am believing this is going to help and the lesions are going to go away. I am going to try to do better this year with my blog and my attitude. I know I shouldn't have a bad attitude or a pity party because I am really blessed.